Comments on: Save Her Life http://sepiamutiny.com/blog/2006/08/22/save_her_life/ All that flavorful brownness in one savory packet Sat, 30 Nov 2013 11:11:28 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Rhadika http://sepiamutiny.com/blog/2006/08/22/save_her_life/comment-page-2/#comment-278617 Rhadika Tue, 28 Sep 2010 20:35:17 +0000 http://sepiamutiny.com?p=3718#comment-278617 <p>I am 24,female n a dentist from india.I am willing for my bone marrow donation.Contact me at dentistgen@gmail.com or +917814289101</p> I am 24,female n a dentist from india.I am willing for my bone marrow donation.Contact me at dentistgen@gmail.com or +917814289101

]]>
By: POCL http://sepiamutiny.com/blog/2006/08/22/save_her_life/comment-page-2/#comment-244138 POCL Sun, 19 Jul 2009 03:44:48 +0000 http://sepiamutiny.com?p=3718#comment-244138 <p>A new cancer centre is opened in the name Nirali, a good amount of Money was donated by her Grand father, I am doubtful if high quality new designed and new equipment were really purchased for this centre. hope every body who donated knows about it.</p> A new cancer centre is opened in the name Nirali, a good amount of Money was donated by her Grand father, I am doubtful if high quality new designed and new equipment were really purchased for this centre. hope every body who donated knows about it.

]]>
By: Bitterlemons http://sepiamutiny.com/blog/2006/08/22/save_her_life/comment-page-2/#comment-133212 Bitterlemons Tue, 01 May 2007 19:36:37 +0000 http://sepiamutiny.com?p=3718#comment-133212 <p>Just wanted to provide an update - very sadly, Nirali passed away this past weekend (4/27). The site has details, but briefly, although the cord blood seemed to "take" she developed complications and her body couldn't handle it.</p> Just wanted to provide an update – very sadly, Nirali passed away this past weekend (4/27). The site has details, but briefly, although the cord blood seemed to “take” she developed complications and her body couldn’t handle it.

]]>
By: chick pea http://sepiamutiny.com/blog/2006/08/22/save_her_life/comment-page-2/#comment-107944 chick pea Tue, 19 Dec 2006 13:44:37 +0000 http://sepiamutiny.com?p=3718#comment-107944 <p>Here is an update on Nirali:</p> <blockquote>While Nirali has not found a bone marrow match from a donor, she has a cord blood match. Cord blood is donated by willing parents at time of child birth. It usually has enough cell dose to use for transplant in little children. Nirali has found such a cord blood which has been put on hold for her. More information on cord blood donation: http://www.marrow.org/DONOR/Donation_Transplant_Process/The_Donation_Procedure/CB_Donation/index.html We don't have words to express our gratitude toward our family, friends and so many volunteers who helped us in organizing bone marrow drives across the country and even at some international locations. And special thanks to all of you who have registered to be potential bone marrow donors. You have given hope to many many patients like Nirali. Thank you so much...We are touched that so many of you are worried about her and ask about her health. We will try our best to keep the site updated. Thank you all for your support and prayers. </blockquote> <p>She is currently at Duke undergoing the prelim tests before her transplant on Xmas eve.</p> <p>Cord blood is another option. For those having children in the future, it's something to consider donating, and getting more information on. It saves lives... it really does.</p> <p>Happy Holidays to all.</p> Here is an update on Nirali:

While Nirali has not found a bone marrow match from a donor, she has a cord blood match. Cord blood is donated by willing parents at time of child birth. It usually has enough cell dose to use for transplant in little children. Nirali has found such a cord blood which has been put on hold for her. More information on cord blood donation: http://www.marrow.org/DONOR/Donation_Transplant_Process/The_Donation_Procedure/CB_Donation/index.html We don’t have words to express our gratitude toward our family, friends and so many volunteers who helped us in organizing bone marrow drives across the country and even at some international locations. And special thanks to all of you who have registered to be potential bone marrow donors. You have given hope to many many patients like Nirali. Thank you so much…We are touched that so many of you are worried about her and ask about her health. We will try our best to keep the site updated. Thank you all for your support and prayers.

She is currently at Duke undergoing the prelim tests before her transplant on Xmas eve.

Cord blood is another option. For those having children in the future, it’s something to consider donating, and getting more information on. It saves lives… it really does.

Happy Holidays to all.

]]>
By: A N N A http://sepiamutiny.com/blog/2006/08/22/save_her_life/comment-page-2/#comment-82476 A N N A Sun, 27 Aug 2006 22:33:11 +0000 http://sepiamutiny.com?p=3718#comment-82476 <p>As if last night's meetup wasn't enough of a gift from this website...now your comment fills me with a grateful sort of delight. <b>Thank <i>you</i>.</b> It's amazing and fulfilling to learn that a mutineer did something so important, after something as disposable as a post from us. Go you! I love your update! :)</p> As if last night’s meetup wasn’t enough of a gift from this website…now your comment fills me with a grateful sort of delight. Thank you. It’s amazing and fulfilling to learn that a mutineer did something so important, after something as disposable as a post from us. Go you! I love your update! :)

]]>
By: Project 37 http://sepiamutiny.com/blog/2006/08/22/save_her_life/comment-page-2/#comment-82472 Project 37 Sun, 27 Aug 2006 22:15:31 +0000 http://sepiamutiny.com?p=3718#comment-82472 <p>Just got back from the drive at the temple in Edison, NJ. Happy to report that despite less than pleasant weather, they were enjoying what appeared to be a significant turnout. I was told that while the turnaround process is normally 12 weeks, they were able to make an exception for Nirali and expedite it to 8.</p> <p>Again, thank you <em>so</em> much for calling attention to this. Even I'm not able to help Nirali directly, I'm glad to have been made aware of the opportunity to potentially help someone else equally in need.</p> Just got back from the drive at the temple in Edison, NJ. Happy to report that despite less than pleasant weather, they were enjoying what appeared to be a significant turnout. I was told that while the turnaround process is normally 12 weeks, they were able to make an exception for Nirali and expedite it to 8.

Again, thank you so much for calling attention to this. Even I’m not able to help Nirali directly, I’m glad to have been made aware of the opportunity to potentially help someone else equally in need.

]]>
By: Rupy http://sepiamutiny.com/blog/2006/08/22/save_her_life/comment-page-2/#comment-81946 Rupy Fri, 25 Aug 2006 18:33:15 +0000 http://sepiamutiny.com?p=3718#comment-81946 <p>Hi, I am so glad you are bringing attention to such an important matter and i really hope you can find a match for her. I saw a request on Zee Tv and thought i google to see if more is being done. Have thought about people going to different churches, temples, gurudawara to raise awarness. Good luck, Rupy</p> Hi, I am so glad you are bringing attention to such an important matter and i really hope you can find a match for her. I saw a request on Zee Tv and thought i google to see if more is being done. Have thought about people going to different churches, temples, gurudawara to raise awarness. Good luck, Rupy

]]>
By: Desi http://sepiamutiny.com/blog/2006/08/22/save_her_life/comment-page-2/#comment-81757 Desi Fri, 25 Aug 2006 00:51:05 +0000 http://sepiamutiny.com?p=3718#comment-81757 <p>Any help is greatly appreciated : <a href="http://velai-illa-vetti.blogspot.com/2006/08/appeal-for-my-cousin-set-to-undergo.html">http://velai-illa-vetti.blogspot.com/2006/08/appeal-for-my-cousin-set-to-undergo.html</a> <a href="http://chennaicentral.blogspot.com/2006/08/if-you-would-like-to-help-poor-girl.html">http://chennaicentral.blogspot.com/2006/08/if-you-would-like-to-help-poor-girl.html</a> Thank you.</p> Any help is greatly appreciated : http://velai-illa-vetti.blogspot.com/2006/08/appeal-for-my-cousin-set-to-undergo.html http://chennaicentral.blogspot.com/2006/08/if-you-would-like-to-help-poor-girl.html Thank you.

]]>
By: Kalpesh Mathuria http://sepiamutiny.com/blog/2006/08/22/save_her_life/comment-page-2/#comment-81651 Kalpesh Mathuria Thu, 24 Aug 2006 20:11:52 +0000 http://sepiamutiny.com?p=3718#comment-81651 <p>Hi, me and my wife are both registered bone marrow donors. We are from India. Please contact us kmathuria@earthlink.net to see if there is a match.</p> Hi, me and my wife are both registered bone marrow donors. We are from India. Please contact us kmathuria@earthlink.net to see if there is a match.

]]>
By: chick pea http://sepiamutiny.com/blog/2006/08/22/save_her_life/comment-page-2/#comment-81551 chick pea Thu, 24 Aug 2006 10:55:24 +0000 http://sepiamutiny.com?p=3718#comment-81551 <p>also, as a side node, here is a link to an EXCELLENT documentary: <a href="http://www.pbs.org/independentlens/lioninthehouse/index.htm">A Lion In The </a>House that i somehow (and fortunately) came across while flipping channels back in june on PBS.. it was filmed over 6 years at Cincinnati's Children Hospital... it follows a children with leukemia to hodgkins disease and other pediatric cases...here is a brief description:</p> <blockquote>A LION IN THE HOUSE follows the stories of five exceptional children and their families as they battle pediatric cancer. From the trauma of diagnosis to the physical toll of treatment, this series documents the stresses that can tear a family apart as well as the courage of children facing the possibility of death with honesty, dignity and humor. As the film compresses six years into one narrative, it puts viewers in the shoes of parents, physicians, nurses, siblings, grandparents and social workers who struggle to defeat an indiscriminate and predatory disease. </blockquote> <p>it is the<b> most honest </b>piece about childhood cancers that i have ever seen, it is frightfully similar to what i see on a daily basis.. i could not stop tears from flowing...and i can bet most of you will also not have a dry eye... also, on the brownfront, an indian oncologist, Dr. Vinod V. Balasa, who took care of tim woods (one of the patients who unfortunately succumbed to the disease)...</p> <p>if you have a chance to see it, i urge you to do so... it will bring a lot of insight into the 'big picture' of the <b>horrific, ugly, big C</b>--the emotional toll on the patient (when a 14 year old says on camera, he has to drink to numb himself and to forget that he is dying...) to the impact it can have on a family...to financial woes... and other social concerns that arise... the website itself has a lot of information and useful links to those who are interested..</p> <p>also, please understand/and remember that adults with cancers have similar emotional tolls that they and their families have to deal with...sometimes we are more emotinally entwined with pediatric cases, however have to remember that people our own age to as old as 101 (yes i had a patient that old) suffer as well..</p> <p>you can also see what <b>you can do </b>to change a lot of the suffering by a prick of a needle and registering into the bone marrow registry... i strongly urge those who are physically able--to register... <i>you really can make a difference...</i></p> also, as a side node, here is a link to an EXCELLENT documentary: A Lion In The House that i somehow (and fortunately) came across while flipping channels back in june on PBS.. it was filmed over 6 years at Cincinnati’s Children Hospital… it follows a children with leukemia to hodgkins disease and other pediatric cases…here is a brief description:

A LION IN THE HOUSE follows the stories of five exceptional children and their families as they battle pediatric cancer. From the trauma of diagnosis to the physical toll of treatment, this series documents the stresses that can tear a family apart as well as the courage of children facing the possibility of death with honesty, dignity and humor. As the film compresses six years into one narrative, it puts viewers in the shoes of parents, physicians, nurses, siblings, grandparents and social workers who struggle to defeat an indiscriminate and predatory disease.

it is the most honest piece about childhood cancers that i have ever seen, it is frightfully similar to what i see on a daily basis.. i could not stop tears from flowing…and i can bet most of you will also not have a dry eye… also, on the brownfront, an indian oncologist, Dr. Vinod V. Balasa, who took care of tim woods (one of the patients who unfortunately succumbed to the disease)…

if you have a chance to see it, i urge you to do so… it will bring a lot of insight into the ‘big picture’ of the horrific, ugly, big C–the emotional toll on the patient (when a 14 year old says on camera, he has to drink to numb himself and to forget that he is dying…) to the impact it can have on a family…to financial woes… and other social concerns that arise… the website itself has a lot of information and useful links to those who are interested..

also, please understand/and remember that adults with cancers have similar emotional tolls that they and their families have to deal with…sometimes we are more emotinally entwined with pediatric cases, however have to remember that people our own age to as old as 101 (yes i had a patient that old) suffer as well..

you can also see what you can do to change a lot of the suffering by a prick of a needle and registering into the bone marrow registry… i strongly urge those who are physically able–to register… you really can make a difference…

]]>